Immunity Issues

Many people think that with cancer you only have immunity issues when you are going through chemotherapy or radiotherapy etc. but many of us are on medications that affect our immunity all the time, with this is the fact that we are recovering from treatment.

It is a hard world when you have to explain years later that, you still can’t pat a dog. It’s hard when plants you have had around you for years suddenly affect you like hay fever. I tend to get rashes from plants perfumes and some foods. Or I get ill from foods. These are things that have never bothered me, but since chemo and changes in medication I am susceptible to them. I have to take off my crucifix on a regular basis as I get rashes around my neck from it. I have changed chains many times but still, if I sweat too much or if I am rashing from something else, I have to take it off and take out the earrings. I still have to be careful on what I use to clean the house, the dishes, clothes and me. One bad choice means I am covered in a rash.

I still get these weird sores, that are just an infection of the skin. They can be painful. But if you have never had these problems you don’t understand. If you have had a cancer then it was treated and you are fine, you don’t understand. But there are many of us out there who are still wearing the damage of the cancer, medications and treatments on our bodies. We suffer in silence or find excuses to not pat pets, or avoid wearing or going to things, because you just get tired of having to explain over and over again.

Not everyone has a happily ever after story about cancer. So many people are still fighting it and the effects of it for years. We have to battle against the media that shows people happy and glowing after treatment. No one wants to hear the story of people who are still dealing with the side effects, or even still battling cancer. We tend to have a belief that you get over it or you die. This is why so many people who still suffer effects, do it in silence. I must put in here too, that the mental health side of this has a huge impact. You feel isolated and cut off, you have no one to talk to about it, because if you do you feel like you are not feeling blessed enough that you are still here, or you have to deal with people who don’t understand why this is still a problem.

Why is it so hard? why isn’t there more done to help with these things? I know I probably sound all whingey  and whiney about this. Yeah yeah heard it all before from you lady, you have bone problems, you feel sick, what else are you going to whine about? I guess I will whine a lot about these things. Because it helps me, and when I get responses, I know I am helping some people. I don’t always publish responses to my posts, because some of them are too private, but they remind me why it is important that I keep doing this. This is to help those who need it. Especially my people we don’t talk enough about this and I still hope to set up some kind of advocacy for us to be able to help each other and share information with each other, so that no one has to go through this journey alone.

Thank you

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About proudblacksista

An Aboriginal woman. mother of 4 diagnosed with an inoperable brain tumour 7 years ago.I want to share my story to help others. I am working to help other Aboriginal people face the battles of Cancer. Email me with your stories or concerns at aboriginalcancer.com View all posts by proudblacksista

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