Cancer Stories…Short and sweet.

I have posted here some of the stories that you have shared with me when you have read my blog. I waited for the writers to respond and allow me to reprint their stories. These stories are more than just a short comment box. They are important for all of us to read and to learn from them.

 

I have found that trying to find help when you have a family member, my wife is too hard. I looked all over for some aid with the kids, the bills getting to and from the hospital and the paying for the parking. I reached out to so many organisatins and got nothing for my trouble, just huge shame face over having to get help. No one was able to help me. All these cancer places that shay they help couldn’t help me. But the biggest cheek was I was asking cancer council to help me, I rang them and they told me organisations that would help, but they didn’t. But then they are asking me for money to help them. What the hell is that?  I can’t give them money when I am trying to keep my kids and my wife safe, I have to get her to the hospital I have to get her to appoinments. I have to find a way to get the kids to and from school and not make more debt by putting them in care. I have to try to feed my family when I don’t have time. I have to give my kids more than 2minute noodles, but I don’t have the time. I have to care for the kids mum. I have to make sure she is alright and that she can be safe and healthy and that we can watch out for our kids and see them grow up…

 

 

I have been battling breast cancer and I was at an end with getting help. Where I live there are no Aboriginal and Torres Strait Islander services to help me clean the house, get to the shops or get to the doctor. I depended on the community transport, so that my partner didn’t have to always take time from work. A friend at my daughters play group told me about mummy’s wish, she said he sister had reiceved some help from them, she gave me the number. I called, I spoke to a lovely woman who seemed to want to help me and I was so happy at this, then as we talked more and I explained that no Aboriginal and Torres Strait Islander sercives in my area to help with cleaning etc. She stopped and said Oh your Aboriginal, we don’t really get funding, you have your own services or try other services that get funding for ATSI people. Well I was so pissed off I swore at her. Why won’t they help me? Why do they need Government funding to help me? I hung up on her and continued to phone around, I got onto a HACS service I asked them straight away, do you help Aboriginal and Torres Strait Islander people? Do you have funding? The man on the phone, told me that yes they have funding but people are people, and that they didn’t limit the number of people they help by the colour of the skin. I was so happy I cried. I finally had somebody to help with the house, just to do what I couldn’t and to take me to the chemist and other places. But this makes me wonder how many people are not getting help because organisations do not have specific funding for Aboriginal and Torres Strait Islander people…

 

I will tell you who I am ….. I am a student with ovarian cancer. I had no idea a girl in high school could get something like that. Who is out there talking about it and helping us. I went to the doctor and my mum was sure I was pregnant. She was wrong, I have this stupid thing in my uterus. Who thinks about this when you are trying to get good grades. I want to go to university, I want to travel. now I am looking at surgery, chemotherapy and a lot of drugs. I don’t want to go through this. I have to do it alone, because who understands what I am thinking or what this thing is? My mum got a lady at the hospital to talk to me, I think she was from the hospital? She was a lot older than me, she had kids and a job and was telling me how good life will be and to be posative but, she has done what I want to do. How do I find someone who knows what it is like when you are young? Why are all the cancer ads of women who are white, rich and middle age? Where are the other races? where are the young? the only thing I see with young people all are about lukemia. We don’t fit into the box that is out htere where is us? where do we fit in?…

 

 

I read your blog, my sister showed it to me. I have a brain tumor too. I am a man in my 30 something. I read what you said about the punch drunk, saddle drunk, tackle drunk and I thhink you have hit the nail on the head. I am having chemotherapy at the moment and I feel like crap all the time. Did you get lots of head aches? did you feel like screaming? did you have times when you had no memory of what happened to you? I think that to much focus is on breast cancer. What about the average Aboriginal and TSI bloke? We don’t get enough of a mention in the government promotions. We have prostate cancer, we have a lot of cancers and we also sometimes have breast cancer. I like that you posted other peoples stories, this is mine. I found out I had the cancer because I was hit in the head with a ball at football training. It was nothing big, but the coach said I blacked out and he wasn’t taking any chances. II hated him for that, because it showed what else I had. I had this big thing in my head, I was sent off to the oncologist and other specialists in the hospital. I was given medication to start taking straight away and had all these tests, scans and things like that. I am having chemotherapy now and I will be having a surgery to remove it. But I want back all the missing time. All the times I have no idea what I have done or said. I have had to depend on my family and friends, I know what you mean about you find out who is who when you go through this. I had a lot of people disappear. I found that I didn’t know who to ask for help, no one knew who to turn to I had to move in with my sister, because I took too much time off work and couldn’t pay my rent. I spent too much money getting cabs to and from the hospital because I was sick and couldn’t drive myself and had no one to do it. I have so much to pay back with bills and this worries me. I try to stay positive and I try to deal with the debt in small ways, slowly paying it off. but I would have liked to have had some help out there to get me to and from, to help with the cleaning and washing, help to pay the bills. I have heard of people crowd funding to help pay off things for medical reasons. We all shouldn’t have to do that. We need to have an organisation to help everyone with cancer to get help.

 

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About proudblacksista

An Aboriginal woman. mother of 4 diagnosed with an inoperable brain tumour 7 years ago.I want to share my story to help others. I am working to help other Aboriginal people face the battles of Cancer. Email me with your stories or concerns at aboriginalcancer.com View all posts by proudblacksista

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