Brain Tumour Support Services E-letter

Letter from the editor Welcome to this final edition of the newsletter for 2015, which has a focus on the very special role of carers. In News & Events, you’ll find details of a new Brisbane support group for young adults run by CanTeen, and a report from the recent BTAA consumer forum. In an article Caring for the Carers, Sylvia Burns discusses the importance of self-care for both patients and carers. The Brainchild Foundation has offered some tips to assist in caring for a child with a brain tumour. We’ve also included a list of support services offered by Carers Queensland as well as contact details. Till next time stay happy, keep well and keep smiling. Anne Volunteer Editor Brain Tumour Support Service Newsletter Read more > Have your say! We need your help to improve our service and make sure it is meeting your needs. What topics would you like to see covered in our information sessions? What articles would you like to see in our newsletter? Fill out the survey online now > Report from the 2015 BTAA Consumer Forum Dominique Longshaw reports from the BTAA Summit held at Cancer Council Queensland in October 2015. Highlights from the 3rd Brain Tumour Alliance Australia (BTAA) National Summit  included: the mobilisation of funds being raised for brain tumour research – both clinical and psychosocial, the philanthropic funding for a brain tumour care coordinator, and our discussion around the need to raise more awareness and funds for research in childhood brain tumours. Read more > Upcoming Information Sessions – 2016 Information Sessions – Brisbane, 2016 The first information session for 2016 will be Thursday 3rd March. Check our website in February or call 13 11 20 for details. Read more > CanTeen Brain Tumour Support Group in West End CanTeen counsellor Hiromi Ogata has started a support group for young adults with a brain tumour. The group meets every fortnight, from 12-1.30pm at the CanTeen office in West End. You don’t need to become a member of CanTeen – any young adult (18+) affected by a brain tumour can join. Attendance is free. Read more > Self care for partners and caregivers Cancer Council Queensland’s Sylvia Burns discusses the importance of self-care for partners and carers. A diagnosis of cancer can be a really distressing and challenging event, not only for the individual concerned, but also for partners and close family members as well. Although brain tumours are relatively rare, the combined effects of cancer, treatment and the brain injury that follows pose not only a threat to life but to a person’s sense of self as well. Read more > Caring for a child – Brainchild Foundation To care for a child with a brain tumour, parents need to look after themselves – some tips from the Brainchild Foundation. A brain tumour diagnosis is life-changing, for children and adults alike. For children, the experience is complicated by the fact that they may not understand what is happening. Whatever the age of the child, the parents usually carry the bulk of the emotional burden. As a result, parents can experience depression or anxiety in varying degrees long after their child has finished his or her treatment. Read more > Support for family carers – Carers Queensland At some stage in their life 1 in 8 Queenslanders will identify as a carer. Carers Queensland aims for better and broader community acknowledgement of the lives of our carers, of the tiring and difficult work which they do each day – often because there is no one else who can do it. In order to assist carers, Carers Queensland provides a range of support services designed to help family carers maintain their own wellbeing. Read more > Links and useful information Brain Tumour Support Service – printable newsletter Download a pdf of the current edition of our newsletter to print or share. Download newsletter Making connections Talking to others who have been affected by the diagnosis of a brain tumor can sometimes help. Connect with people over the telephone, online or face-to-face through a brain tumour support group. Find out more about making connections Support services for people affected by brain tumours ABIOS, Beyond Blue Carers Queensland, CanTeen Counceling Service are just a few of the additional support services available to people suffering from brain tumors. Find out more about support services Australian Clinical Trials Website Find out more about clinical trials, including information on brain tumour trials currently registered in Queensland, by visiting the Australian Clinical Trials website. Find trials near you by using the website’s Search for a Clinical Trial tool Brain tumour awareness A number of organisations and not-for-profit groups are actively working to raise awareness of brain tumours and brain cancer. Find out more about brain tumour awareness Cancer Council Queensland To find out more about the range of support and cancer information services offered by Cancer Council Queensland call 13 11 20, email us at askanurse@cancerqld.org.au or visit cancerqld.org.au © Cancer Council Queensland | ABN 48 321 126 727 | Phone +61 (07) 3634 5100 This email was sent to you by Cancer Council Queensland. You received this communication because you have subscribed to one of the CCQ digital campaigns. If you have any questions please email us at: publicofficer@cancerqld.org.au or write to us at: Public Officer, Cancer Council Queensland, PO Box 201, Spring Hill Qld 4004. Click here to unsubscribe.

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