Brain Tumour Support Services E-letter

Letter from the editor
Welcome to this final edition of the newsletter for 2015, which has a focus on the very special role of carers.

In News & Events, you’ll find details of a new Brisbane support group for young adults run by CanTeen, and a report from the recent BTAA consumer forum.

In an article Caring for the Carers, Sylvia Burns discusses the importance of self-care for both patients and carers.

The Brainchild Foundation has offered some tips to assist in caring for a child with a brain tumour. We’ve also included a list of support services offered by Carers Queensland as well as contact details.

Till next time stay happy, keep well and keep smiling.

Volunteer Editor
Brain Tumour Support Service Newsletter

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Cancer Council Queensland
Report from the 2015 BTAA Consumer Forum
Dominique Longshaw reports from the BTAA Summit held at Cancer Council Queensland in October 2015.

Highlights from the 3rd Brain Tumour Alliance Australia (BTAA) National Summit  included: the mobilisation of funds being raised for brain tumour research – both clinical and psychosocial, the philanthropic funding for a brain tumour care coordinator, and our discussion around the need to raise more awareness and funds for research in childhood brain tumours.

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Brain tumour information sessions 2015
Upcoming Information Sessions – 2016
Information Sessions – Brisbane, 2016

The first information session for 2016 will be Thursday 3rd March. Check our website in February or call 13 11 20 for details.

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CanTeen Brain Tumour Support Group in West End
CanTeen counsellor Hiromi Ogata has started a support group for young adults with a brain tumour.

The group meets every fortnight, from 12-1.30pm at the CanTeen office in West End. You don’t need to become a member of CanTeen – any young adult (18+) affected by a brain tumour can join. Attendance is free.

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Self care for partners and caregivers
Cancer Council Queensland’s Sylvia Burns discusses the importance of self-care for partners and carers.

A diagnosis of cancer can be a really distressing and challenging event, not only for the individual concerned, but also for partners and close family members as well. Although brain tumours are relatively rare, the combined effects of cancer, treatment and the brain injury that follows pose not only a threat to life but to a person’s sense of self as well.

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Cancer Council Queensland Fundraising
Caring for a child – Brainchild Foundation
To care for a child with a brain tumour, parents need to look after themselves – some tips from the Brainchild Foundation.

A brain tumour diagnosis is life-changing, for children and adults alike. For children, the experience is complicated by the fact that they may not understand what is happening.

Whatever the age of the child, the parents usually carry the bulk of the emotional burden. As a result, parents can experience depression or anxiety in varying degrees long after their child has finished his or her treatment.

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Support for family carers – Carers Queensland
At some stage in their life 1 in 8 Queenslanders will identify as a carer. Carers Queensland aims for better and broader community acknowledgement of the lives of our carers, of the tiring and difficult work which they do each day – often because there is no one else who can do it.

In order to assist carers, Carers Queensland provides a range of support services designed to help family carers maintain their own wellbeing.

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Links and useful information
Brain Tumour Support Service – printable newsletter

Download a pdf of the current edition of our newsletter to print or share.

Download newsletter

Making connections

Talking to others who have been affected by the diagnosis of a brain tumor can sometimes help. Connect with people over the telephone, online or face-to-face through a brain tumour support group.

Find out more about making connections

Support services for people affected by brain tumours

ABIOS, Beyond Blue Carers Queensland, CanTeen Counceling Service are just a few of the additional support services available to people suffering from brain tumors.

Find out more about support services

Australian Clinical Trials Website

Find out more about clinical trials, including information on brain tumour trials currently registered in Queensland, by visiting the Australian Clinical Trials website.

Find trials near you by using the website’s Search for a Clinical Trial tool

Brain tumour awareness

A number of organisations and not-for-profit groups are actively working to raise awareness of brain tumours and brain cancer.

Find out more about brain tumour awareness

Cancer Council Queensland

To find out more about the range of support and cancer information services offered by Cancer Council Queensland call 13 11 20, email us at or visit

© Cancer Council Queensland | ABN 48 321 126 727 | Phone +61 (07) 3634 5100

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About proudblacksista

An Aboriginal woman. mother of 4 diagnosed with an inoperable brain tumour 7 years ago.I want to share my story to help others. I am working to help other Aboriginal people face the battles of Cancer. Email me with your stories or concerns at View all posts by proudblacksista

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