For two years I’ve battled Stage 3 Non Hodgkins Lymphoma bee through 18 months of chemo and then diagnosed last May with Thyroid Papillary Carcinoma. I only wish I could feel a portion like the person I was once. Although I have had the surgery a complete thyroidectomy and neck dissection last July and Radiation Ablation in October 2015, I struggle to do much of anything and crave sleep. I’m sleeping just as much as I was pre surgery and treatment but I feel there is something not right. My bloods show my levels are apparently ok and I cannot understand why I’m not feeling at least a slight improvement. The doctors and endocrinologist do not listen to me and I swear they think I’m mad. My memory is shot I can’t remember people’s names that I would never forget, even forgetting my own children names at times. My glands in my throat have been swollen for 4 weeks now, no fevers, no sore throat or cold or anything remotely close that could explain it. All they want to do is check my thyroid levels or whatever it is they claim to check in bloods but all they return showing is things are ok at the moment so I’m on a break from treatment. I have to work a full time job, I’m a high school teacher and it’s tough but I have to have an income to survive. I’m tired of being tired, exhausted and not physically being able to even make myself a light snack or dinner. I’m over it all I feel I’m going crazy and I want my old life back. I have contacted the NSW cancer council well over 8 months ago numerous times to have some type of support still waiting on a call back. I thought people who are diagnosed and registered as a cancer patients on the registers would be contacted by someone not us chasing them. It’s a long lonely journey and I’m really feeling so many different things right now. Why don’t doctors n specialist in this field listen to the patient. I feel like I’m locked out on what’s happening with everything and couldn’t tell you what their doing or plans for me as I dunno myself. I am tired, stressed and unsure I just want to be the person I once was before cancer befriended me.
This is a story that was shared on a Face Book page I run, called Aboriginal Cancer Connections.