About Me

This is all about being an Aboriginal mum with inoperable cancer. How to live and survive. I want to share my wisdom, basically what I have been through so I can help some one, any one.
This isn’t going to be pretty I will share the good the bad the ugly of life with cancer and raising kids. Trying to pay the bills and all those fun things.
I will share tips on how to save money and believe me you need to know that because sometimes those bills are in the thousands and they are not on the PBS.
I will share with you my humours both bad and good. It is going to be a rocky ride because the Government is changing things and making it harder and the employment situation isn’t pretty and the kids just keep on needing. You know what they are like? They need shoes, clothes, food and school stuff. We don’t have the money for the luxuries but we have each other. You try telling that to a teenager as a blessing. They just roll them eyes.
But I want to share to tell my story to help and I really hope it helps some one.
Thank you


13 responses to “About Me

  • LYDIA

    I have read some of what you say, I enjoy it and I am learning from it. please don’t stop writing you are a voice for all those who suffer from the little known cancers.

  • TrishD

    Love your site, your spirit, your wisdom and your truth. Respect! Much love. X

  • Helena Hill

    I hope you don’t mind me reaching out to your on your site, I have been reading your articles and loving the raw honesty!

    I was especially drawn to your comment in the article ‘Aboriginal Cancer is different’ and your comment that ‘we are used to the medical profession doing what it whats, without explaining to us what is happening’.

    I am writing a piece for uni at the moment on Aboriginal Women giving birth in western hospitals and how this affects them – the care given and the vast difference between this method and the traditional birth of country. I would really like to talk with you offline and ask your a few questions given your background in the medical arena and as a mother.

    Thank you and look forward to talking.

    Helena

  • GlobalVillageStory (@GlobalVStories)

    I’ve only just discovered your blog and I’d love to talk some more with you about sharing your story on our Global Village Storytelling Project. Here is a link to the contact form. We’d love if you would reach out to us. https://globalvillagestorytelling.wordpress.com/contact/

  • Jim Mungall

    Hello Colleen,
    I saw your interview on Lateline.
    You are a truly amazing person, I admire your courage and your compassion for others.
    Please remain strong and keep up the good work you are doing.
    Love and best wishes,
    Jim
    North Beach SA

  • Liz Dovey

    G’day Colleen
    I found your blog after just hearing your interview on ABC radio RN “This is About’. I found the interview, and your writings here, very moving – you are such an indomitable person, and tell your story so powerfully. Respect. I am always so sad to hear about the racism that still pervades so many people and institutions. It is so unfair and so inexplicable to me. We are all the same under our skins. Unable to offer to help more practically as I’m also housebound with a disability myself (and a longtime single mum with an Islander daughter), I still wanted to reach out to congratulate you on your gutsiness and to give what little moral support I can. With very best wishes and hope for a brighter future for you and your children.
    Hazel

  • Mathew Mackie

    Hello Colleen,

    My name is Mathew Mackie, and I’ve been a longtime reader of your superb blog. As Towering as it is flooring. You’re shining a light on a topic that people only feel, and not see the larger picture. Amazing amazing work. I also happen to be the Editor-in-Chief of a local publication online, and I’d love to reprint your work wholesale, to bring your clear vision to more people.

    If you are indeed interested, please contact me on the supplied email address.

    Thank you for your time.

  • vk69

    Hello Colleen,

    Thank you for putting the “3 Things…..” article on your blog. I wish I had a dollar every time I try to explain the same thing repeatedly to my friends and family.
    I don’t expect them to understand what chronic Sarcoidosis is, not even doctors fully understand it even though it was first described in the 1870’s.
    All I ask, is they accept the effects it has on my body and what it does to me on a daily basis. It can effect all parts of the body and takes on the symptoms of diseases associated with those parts affected.
    My constant fatigue, haphazard sleeping patterns, nausea, loss of appetite and not feeling like doing anything or go anywhere is not a choice. I do the best I can with how I am feeling on the day.
    On the surface, I look perfectly fine, the only hint I have is my breathing is bad and that can be attributed to the chronic Asthma. But I really do feel like shit underneath.
    The only medication for it, to stop it spreading is the treatment of last resort, Prednisolone. This medication has in itself, devastating effects on me and takes up to a year to recover from depending on the length of the dosage regime.
    Pulmonary Sarcoidosis and it’s accompanying eye disease, Uveitis is nothing like the suffering you are going through, Colleen, but those who have it will eventually succumb to it. I estimate I will live to around 66yo, that gives me 12 years if it doesn’t spread to my heart, neuro system or anything else.

    All The Best,

    Gary

  • vk69

    Hello Colleen, how have you been feeling these past weeks?

    XX

    Love,

    Gary

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