A big part of NAIDOC is seeing family and community that you don’t always see because of work. I love going to NAIDOC Friday and seeing all the Elders and getting hugs from them, its a special feeling when those old girls reaffirm your place in the community and remind you or tell you that you are doing a good job.
It’s important to reinforce those kinship bonds and find out how they are doing and what else is going on. It’s a Lubly feeling when you’re being hugged and the hugging auntie calls over another Elder and tells them who you are and whose daughter you are and where you grew up and share information. Big bonus when the other Elder knows your mum, as is usually the case with me.
The important sharing of community information from the old girls is another plus. Call it gossip if you want, but getting information from an Elder isn’t petty gossip they tell you as a warning or a nudge for you to do something to help.
COVID has changed everything including how we as a community respond to each other. I am concerned it might be another link in the chain that is pulling apart urban communities. Our urban communities are fluid and always changing, sometimes not for the best, but I won’t go into that now.
NAIDOC our week of pride of letting the wider community know we are here we are proud and deadly will never be the same again. But like everything that has been thrown at us, we will survive and adapt.
We invite you to take part in a research project to understand the needs of carers of Aboriginal and Torres Strait Islander people with cancer. This is an important study because we know very little about the needs of these carers to better support Indigenous cancer patients. We want to identify what carers’ needs are and how we can measure them to improve the assistance they receive from health professionals and support services. Helping caregivers may also improve outcomes for Aboriginal and Torres Strait Islander people with cancer.
The Supporting Our Carers study is being run by researchers at Menzies School of Health Research and other universities. Professor Gail Garvey, an Aboriginal woman, is leading the study.
How can I find out more? If you have any questions about this project, you can contact: Lorraine Bell, Project Manager email@example.com PH: (07) 3169 4206
I know I said I would post more regularly, but I’ve been really badly chemo sick lately. It’s driving me crazy, after doing so well, then to suddenly start getting ill, I feel betrayed by my body.
The heat certainly isn’t helping. I’m awake at 3 AM, visiting my bestie, the toilet until around 7-8. I’m on my last round and that is something to be grateful for.
I rent and the house doesn’t have aircon or fans, so we have fans all over the place to help keep the house cool.
Brain tumour does not like heat and summer is the time that I suffer the most. More black outs and fainting.
Each day,I being the delicate little differ down dilly, wilt as the day progresses and suffer more headaches. It’s really not right that I should have to suffer in the heat and some days that means being stuck in my bedroom lying down on pain killers.
I’m pricing portable aircon machines, to see if I can afford one in this lifetime. Put it in my room so that I have a proper cool refuge